Wednesday, March 24, 2010
A Nudge for the New Era
When I posted last I was giving my job one last real good All American try. It didn't work and I walked out with the last of my things at the beginning of February after resigning less than two weeks after my return. I still find it hard to believe and do my share of grieving still just trying to figure out where I fit in now. There's been a lot of pain since then and my I can't begin to explain all the different things I've felt.
It's been a roller coaster ride and I've allowed myself to feel emotional pain like I haven't in a long time. I said the blog would be moving in a different direction definitely because the chronic illness had taken a lead role in my life and was leading it on a whole new path in. It's also because I knew that I needed to blog in a more upfront and personal way. A few years back I remember I'd write in a journal but for a while I refused to write in it at all because I didn't feel safe enough to write what I truly wanted to and decided I wouldn't write fluff. Then one day I opened the journal, wrote all the stuff I had wanted to write only to go back a few months later and tear it all out. I don't feel like I can help others understand what it's like to live the way I do and not be completely open. Most of all, I can't help me. This doesn't mean I would say or do things that would jeopardize my future or that I might regret saying, it just means having a little less pride and being a whole lot more honest. One important piece of information that I was leaving out of my blogging was the dysfunction of my childhood family and its affects on me today. I love my parents and would not want to hurt them, just like I don't think they mean to hurt me. Unfortunately, they failed to protect me as a child and still do today. I haven't given up hope that I might soon get somewhere with them but I do not have a relationship with my brother or sister.
I grew up in the "scapegoat" role and had nearly overcome it (I thought) until I became sick and became once again, easy prey. I had many traits that deep down I knew were the result of my upbringing, for instance working tirelessly to prove to my boss that I was a great employee even though she'd never give me the benefit of the doubt. In fact, on my last day at work the HR Manager finally admitted to me that my boss had a policy changed partially because of something she had wrongly believed about me, this after I had confronted them both on several occasions about how I knew this was the case. It will take me a long time to get over hanging on to a job for so long knowing my boss believed something about me that she wouldn't admit or allow me to disprove. It hits too close to home. Someday I hope to let my former boss know what I think of her but for now Eric is making me promise to wait until my SSDI is all set. Yes, she could be evil enough to lie, lying is one thing she does best.
Even more painful is the fact that as a result of my childhood, I have held so many people at arms length because I feared how they might hurt me if I let them in. Believe it or not, this changed only because of a bad thing. If you don't believe I'm really opening myself up, here it comes. I truly allowed myself to openly trust and love my friends when I found out Pam had cancer and was secretly realizing there had to be something wrong with my health too. That was when I realized I had made friends that I truly would do anything for and even though I knew Pam would be okay in the end, the pain I felt at knowing what she would have to go through to get better was heart wrenching. I knew that I could barely get my own work done but would do anything to help Pam that I knew how so I offered to do as much of her work as I could. That's when I started to open up and started really allowing myself to trust these friends more than I've trusted a friend since I was in junior high.
So, if you know me well you know my pride is one thing I hold onto dearly. I don't walk out of the house without makeup on(which at least 1 doctor has told me doesn't help my case) and I find it difficult to admit I might need a little help. I've made friends over the years because they wouldn't give up on me, even when I made it damn near impossible (Susi, that's you). No matter how we came to be friends, those of you who are reading this most likely have some personal connection to me. Thank you for your help, it means more than I can say. I have a lot of work to do on myself, on letting down my guard, my pride and sometimes asking for help but I swear I am getting better. Many of you have reminded me that I have shoulders to cry on and have no doubt, I'll be a shoulder or a call away anytime for any of you too.
Here's to a new era for Amy's blog. And for those of you unsure of what my chronic illness is here's an abridged overview so if you have actually run out of interesting things to do you can google away! I have a problem with my autonomic system, which controls many of the subconscious activities a human body does. I was first diagnosed with Irritable Bowel Syndrome, then Vasomotor Rhinitis, then simultaneously the big ones, POTS- Postural Orthostatic Tachycardia and RSD- Reflexive Sympathetic Dystrophy. Those last two are the ha ha's that tied everything together. A few months later it was discovered I have adrenal insufficiency. I take a bunch of meds and unfortunately one is prednisone. Adrenal Insufficiency is the supposed easiest of my 3 major illnesses to treat but not treating it could result in death. 3 years ago I weighed 127 lbs. When I left my job in Feb I had gained a few lbs from my settled non-dieting weight of around 135lbs to about 143ish. Today, just about 6 weeks later I weigh around 163 lbs! This is setting off a new slew of testing and advocating for a different med, which so far isn't going well. This is part of what having a chronic illness is all about. I'm told I can't stop the med or I'll die. If I don't stop the med how long before I can't walk from the pain on my RSD riddled right hip, leg and foot? This is the reality I am willing to share with you all now (actually, I had to or you'd have thought I was pregnant). Just kidding, I want to share and hopefully someone else out there new to chronic illness will happen upon this site and find some shared experiences comforting. Who knows?
And so, tomorrow begins the next step.
Sunday, December 27, 2009
A new era for blogging...
Thursday, August 13, 2009
Johnny didn't make an appearance today
You can only imagine my glee when after sleeping for two and a half hours I was woken by a phone call from the nurse at the Doctor's office. Seems the blood was all bad and I needed a complete do over. Did I mention that the RN doing the test was new to it and had to dig around for a vein and then I had to move my arm around like an antenna reaching a signal to get the blood to come out? Well apparently that "breaks" the blood and doesn't work. Whatever, so I told them I'd come back today for round two. As luck would have it, the nurse decided that she'd make sure this time it worked by forgoing the IV and just sticking me each time in a new place. Yay! She's the first nurse I've ever met that didn't use a butterfly needle and there was more of the of "oh I can't find it"than I like to hear so by the time we were done I had 4 fresh holes and very little sense of humor left. Now the trick is holding it together tomorrow. I packed my lunch bag this morning with lots of water and Gatorade and I'm still pumping the fluids. That and keeping a positive attitude will hopefully make tomorrow go better than yesterday did.
In other news I have been working on my backyard oasis. Eric finished building a patio a few weeks ago so I've moved my swing there and have started some planting. Eventually he'll enclose the hot tub so I'll be able to use it this winter. I wanted to plant a garden around my pussy willow so this weekend I did it! Yes it looks kind of sparse right now but the roses will each get to be 3 ft around and tall and I wanted to keep it simple, unlike my other gardens. I was ecstatic when I found a light purple rose bush, the first I've found in all the places I've searched. I'm hoping to do lots more roses everywhere I can. I'm most excited about my wisteria, which isn't yet planted but is the one thing I have wanted for years. It needs something to grow on so it'll be planted right outside the hot tub wall so it can grow up the side of the screened windows and onto the roof, which will be clear plastic. I can't wait to sit under that next year!
Tuesday, July 14, 2009
Flying Purple People Eater
Who says you can't teach an old bike new tricks? I love my old bike but with my disability I can't peddle it for any distance. I was bummed that it meant missing out on family bike trips and had to come up with a way to be with the family, especially with Moxie Day looming. A few months ago I saw a man riding a bike with a motor attached and was fascinated. I clocked him going over 30 mph next to my car! I figured there had to be a way to rig my bike up too so Eric started the research. In less than 2 weeks my old bike went from a worn looking blue bike to a flashy purple with flames and best of all, A MOTOR! With a gas powered kit, spray paint and decals it has been totally transformed. Once again I am riding with my family but the funny thing is I have to idle it in order to stay with them. Sometimes I just take off and do circles because that is so much more fun! It is supposed to go 40 mph although I haven't dared tack it out. I just go fast enough to feel wild and regardless of how I'm feeling I can't help but smile.
Frankie and I in 2006
My bike as Eric started to take it apart for painting
Some flames, pinstriping and a "Happy" border for good measure
Almost done, it just needs the gas tank and the clutch!
Frankie likes this ride so much better! Now when I go without him he carries on in a jealous fit.
And since I like purple so much, I am currently knitting a beautiful lace top in purple cotton. It may not look like much yet but I love stopping every once in a while to look at the lace as it knits up.
Monday, May 18, 2009
WOW!

The DC trip was fun although the weather didn't cooperate at all. We decided to haul our camper to a place just outside the city. In the evenings we were holed up in the camper listening to the rain beat down. We had to yell over the thunderous rain to hear each other inside that thing. The best time of all was when we decided to drive into the city late one night in our jammies to visit the white house and Washington Memorial. Even the rain couldn't stop us from enjoying that escapade and it seemed much more fun than trudging around in the rain during the day.
That being said, it was a difficult trip too. I wanted to go because Eric had never been and I wanted to do something for him. I occasionally wondered if it might not even be possible for me to do all of the walking I'd need to do, but I ignored those thoughts. I figured I could call it quits when I needed to, not really acknowledging that I still haven't accepted what my limits need to be. I ended up pushing myself and ending up in some difficult situations. Perhaps it was what I needed to do in order to realize that I have a disability that is real, even when I like to pretend it isn't. Eric and I both came to better understand that we need to adjust our thinking. I need to accept and ask for accommodations and he needs to remind me to do it. For the first time, I realized that even with a cane there are just some things that I can't do the way I used to. It was heartbreaking when Eric would talk about going back with the kids and I'd think to myself that I can't do this ever again. I finally told Eric that if we went back, I wouldn't be able to go to places with them. I was devastated at the idea that I would become an outsider to the family outings, hearing about them but missing firsthand the laughter and joy of the actual moments. Eric was instrumental in explaining to me that it is time to be proactive in how we approach situations and do it differently but that it isn't the end of my participating in outings with my family. It just means that I may need to do some things in a wheelchair, or do less at a time. I'm no where near ready to be in a wheelchair, even if its just for a short trip but I am ready to accept some changes. The first major adjustment was getting a handicap placard for the car. Now its just a matter of continuing to adjust my expectations and be willing to accept help. This is a road that I never thought to travel but none the less, here I am. I'm still trying to figure it all out and still learning about what comes next. The biggest challenge now is to allow myself and others to see the disability that I have worked so hard to hide.
Monday, March 2, 2009
Please pass the salt
A while ago I wrote about my breakdown at a yarn store when I went only to buy one skein of yarn for a scarf but ended up buying a lot more. I finished the scarf and have worn it to comfort myself at work when only something soft and squishy will do. I took a pic of it modeled by my Valentine Teddy Bear. He came in the mail from the Vermont Teddy Bear Co, a gift from Eric. He has the cutest shirt, which says "Knit Happens". He's also wearing his own little scarf that I made in the same pattern as mine from stash yarn.
Thursday, February 12, 2009
My name is Amy and I'm an addict
Then last week I slipped a little when I bought some yarn to make a vest. Even then I planned to use some stash yarn in the vest too. I thought about it in advance and knew what I was going to buy for the vest, fully justifying my impending purchase. However, I saw some lavender Malabrigo when I got to my LYS and HAD TO HAVE IT! It was new and it was meant to be. I bought it along with the yarn for my vest and figured even though I spent over $100, I had a $50 gift card to make it seem less lavish. I managed to get through that experience with only a twinge of guilt which was almost impossible to feel when my fingers rubbed over that new Malabrigo. Yummmm.
Then came today. Never should I even enter the general vicinity of a yarn store when I'm pissed at my boss. Never! When will I ever learn. I just happened to be in Waterville about a half a mile from a fabulously stocked yarn store today. I told myself when I got out of my meeting there that I would just slip on over for a minute and buy 1 skein. I justified it by telling myself I deserved it for working hard for my money and putting up with the Queen of Lies and Back Stabbing for a boss. I was thinking about how soothing a soft, beautiful scarf that I could fondle (and possibly choke myself with) would be whenever my boss comes near me. So after all kinds of self talk and justification, I went. What I didn't expect was to walk into the store and immediately see those magic words written on the whiteboard "All hand knit yarns 20-50% off". Oh my. I immediately started to shake and get that sick nervous feeling inside while my thoughts ran into overdrive. I must buy, I mustn't let this sale die in vain while simultaneously the other part of my brain said "run, get out now, don't even look, JUST SAY NO!" I kept walking as if I was on autopilot, all the while feeling tingles all through my body and a small bit of nausea. I felt out of control and almost rabid as I began to touch the vast array of heartbreakingly gorgeous yarns. I made myself move slowly in a controlled way even though inside I could feel my heartbeat speeding up and my breathing becoming erratic. I couldn't stop. I have a problem. I need yarn, especially yarn on sale.
When I left I was slightly less shaky but now feeling like a closet yarn freak with a problem. I was carrying my bag wondering how I was going to sneak "that" into the house. My original plan had been to put the 1 skein I was going to buy into my work bag, heck maybe even my purse. I figured it would be days before Eric even knew about it. Usually he teases me about my incessant yarn buying but I wasn't sure how he'd react to another binge so soon after last week. When I got home I tried to smoosh the over sized bag into my work bag, after I took out a bunch of other things to make room. I casually walked in the house and set my stuff down. He's not stupid. He probably knew I'd go to that yarn store before I did. Maybe he knew I had a problem and didn't tell me, who knows. I didn't get into the house 15 seconds before he asked me if I went to the yarn store. I just hung my head in shame. I've never been addicted to anything before I got into yarn. First I started experimenting with the cheap stuff from Walmart and JoAnn's but after a while it just wasn't doing it for me anymore. I started going to dedicated yarn stores and picking out more expensive and luxuriant fibers. They just looked and felt so good! Before I knew it I was buying yarn just to have it, with no particular project in mind for it. How can something that feels so good be bad?!
In my defense though, it could be worse. At least its safe to drive after I've gone on a binge in the yarn store. That's a good thing too, since I'll probably never get a new car and can't afford to bust mine up!
I tried to deny I truly have a problem. I looked up the diagnosis of addiction thinking I may only really like (LOVE times infinity) yarn and if I saw the symptoms I might see that I don't really have a problem. Yeah right. I included the diagnosis here from freedictionary.com for anyone else out there in serious denial of their yarn/fiber addiction. You know who you are! Even though I have a problem I don't plan on stopping. Whenever I think of a car payment vs. buying yarn, the yarn always wins. If there ever comes a time when I get anywhere I'll just hang out in my closet and sniff the yarn.
Diagnosis (from freedictionary.com)
In addition to a preoccupation with using and acquiring the abused substance, the diagnosis of addiction is based on five criteria:
loss of willpower
harmful consequences
unmanageable lifestyle
tolerance or escalation of use
withdrawal symptoms upon quitting
Wednesday, February 11, 2009
playing with smilebox
Sunday, February 8, 2009
Judgement Aside

My 5 year old was insisting on a new sweater so I finally got to work on that. Not only was he insisting on the sweater but he was full of ideas about the colors and how it should look. He really wanted a rainbow sweater. I just couldn't bring myself to do an all out rainbow sweater so we compromised on the colors a bit. I tend to stick to basic hues and little to no color changes in my desire to "blend in" so this was a challenge for me. I had to keep taking deep breaths and remind myself that if it looked downright awful it would be okay. He is definitely his own person and really the only one in the family who could walk out of the house proudly wearing this sweater.
Now I am working (slowly) on a vest with fair isle for myself. It's worked from the bottom up so that's new for me. I'm already getting a little bored with the stockinette and thinking about casting on another project to work on a bit in between. There are so many projects and so little time!
Apart from knitting, I am still working through my grief over the death of Ashlee, one of my neighbors. She was only 12. For those of you who haven't heard the story there it can be found here: http://www.wcsh6.com/news/local/story.aspx?storyid=100128#comments along with my comment to the unfortunate people who felt compelled to judge this family. I just have to keep reminding myself that they aren't blessed with the knowledge I have
I was at a session with a therapist to talk about dealing with my illness when Ashlee died. I was full of thoughts about the talk and a metta chant I was given to practice as I drove home, blissfully unaware of what was happening near my home. I had no idea that many of the things we had talked about in that hour would be put into practice for an entirely different reason.
3 families were directly involved that night. We are a small neighborhood where the children play together and move about freely in each other's homes. There are things we know that only we can know about the families and about the events leading up to that night. It is heartbreaking to see the judgement directed at Ashlee's parents. It is time for judgement to be cast aside. I for one feel no power in anger and blame. It will take a long time to put the pieces back together again. Now that the funeral is over we all have to find our ground. Those 3 families need to figure out how they'll interact with each other and with the rest of us on the street. It is our job to embrace them and stand by them no matter what.
When the 10 year old who survived the crash came by with his mother earlier today I fully understood the crossroads we're at. It was never more important than today to welcome this boy into our home. My son was sick and yet I was filled with pride that he also understood the importance of playing with his friend regardless of how he was feeling. He seems to know innately that even though he wasn't with the others that night, he will play an important part of the healing process. The boy's mother didn't want to come into my house and I understand that. When I looked at her it was as if she'd seen a ghost, which I believe she has and will see for a long time. The fear of judgment was all too plainly there in her eyes. It is tragic that we've come to this. Grieving for a beautiful girl filled with potential while we figure out where everyone stands now. Nothing can be assumed now as we greet each other and look into each other's eyes.
As for the 13 year old's family, only time will tell. The story there is too deep and wrought with unfortunate circumstances for me to explain. I'll admit that I myself judged that family in the past. It was that judgment that kept us from allowing our son to play at their house. There was a time when Eric and I questioned our decision and felt extremely uncomfortable having to explain to them why we made that decision. We all make choices as parents and usually don't ever know if we were right or wrong. As the owners of the snowmobile that family will have their own set of ghosts or demons to deal with. It is more of a struggle for me to keep from judging them, but I am making strides and I'll keep at it. I've learned that sometimes judgement serves a place and that it can save a life. Yet I am seeing now the difference between making choices that you feel are best for your child versus being spiteful and holding a grudge. As for the others, I'll be there for that family too, if ever needed.
I may never be able to see the good in all of this. It is a harsh reminder that we never know what corners our lives will take. I'll just hope that my role in healing will be a positive one and that the pain will begin to diminish in the days/weeks to come.
"You are just as capable of making a mistake as anyone else. By insisting too eagerly upon a small right, you may turn it into a wrong against yourself and also against your neighbor." Lawrence G. Lovasik
Thursday, January 15, 2009
What are you REALLY paying for?
After the septic system was fixed (that day), the tenant contacted a code enforcement officer and before he arrived, removed the fixed parts to create a scenario that would give the impression we had not taken care of the issues. They had told the person fixing the septic system they planned to take it apart after he left, so we had a little heads up on this one. Unfortunately, they did not put it back together so in the end the damage was extensive.
The tenant gave her notice and we had to wait 30 days before we could get in to even see what she claimed was so bad. Once we finally did, we found that sewage had gotten into the floors and the septic had not been working for some time because it had been taken apart.
We made a claim to our insurance company and the agent who visited was coincidentally, the same agent who dealt with the tenant's claim. Apparently, she had moved into a hotel, citing illness and unlivable conditions so the insurance company covered all of her expenses while she lived in a hotel. The agent was also faced with the boyfriend, who he had to tell to stay out of it because he "supposedly" was not part of the family. He too claimed to be sick and disoriented from the situation.
Our costs were over $10K because we had to replace the entire septic system and floors, rugs, etc. This does not even include months of rental income lost because of the time it took to do all of the repairs. We had heard through others that the tenant had contacted Pine tree and was looking to sue us, in fact that was the plan from day one. I have my thoughts about whether that was the plan before she even moved in, but that I'll never prove.
We waited and didn't hear anything for months. We assumed that Pine Tree did some leg work and figured out there weren't grounds to sue us on. At least that was our assumption before today. When we got the letter, we called the insurance agent who handled both our claims. Did he not tell us that we were covered from liability because she had gotten paid and it was the same insurance company? Luckily, he answered our call and verified that the request for this $2000 the tenant is seeking is "double dipping". He might have also mentioned that she's a "tool" (man, I love that word!) Anyway, I have a better word for it, it's called "FRAUD". And that's what I told the lawyer in the letter I wrote in reply to her audacious request for $2000 to cover the costs of temporary housing due to the septic system failure that the tenant herself caused. Yes, I mentioned "fraud" because I for one always call a spade a spade (in this case, the spade is actually a creature lower than prehistoric frog shit at the bottom of a New jersey scum pond). I also mentioned that the lawyer oughta call this agent for the full story and then kindly let us know when this issue has been resolved. To make it easier, I gave her his name and phone number, he's expecting her call. Perhaps I should have asked for an apology too...hmm but truthfully I'd rather never hear from this "creature from below the scum pond" again.
So its a long story, but in the end, this "creature from below the scum pond" bilked Section 8, Pine Tree, the insurance company and Eric & I. You may not care about Eric and I or the insurance company, but guess who's paying for Section 8 and Pine Tree! Before you think this story is rare, let it be known that I've been around social services for a little while now. I won't go there, but I'll also tell you as a landlord that I've seen many other sad excuses for human beings. For instance, a woman with 2 children with Section 8 who paid about $20 a month for a 3 bedroom, claiming the father of the children was involved but didn't live with her. What we observed was that he did live with her, he had a good paying job, they had 2 cars, a motorcycle, outdoor "toys", among many other possessions. We've had people dealing drugs, setting the place on fire, and outright stealing. We've evicted more people than we can count and the apartment building isn't even in a bad part of town. Many of these people accessed social service programs.
So, think about what you are paying for. I for one used to be a far out liberal, wanting programs for everything and everyone. I have seen the error in my thinking and have much different beliefs now. While I firmly believe we need programs to help people who are hurting financially or for reasons not of their making for example mental illness, there are too many people who are taking advantage of those programs by bilking the system. My strongest advocacy and support goes out to children who need every chance we can give them. No child deserves to be hungry, hurt or to live in squalor regardless of how dishonest and corrupt their parents are. I am advocating for mandates to be set and followed so we can save our money and ourselves from dishonest people without making the children suffer. Surely there must be a way because what these children are learning by watching their unlawful, blood sucking parents is not good for them or our future society. When Clinton was president he revamped the welfare system and instituted sterner welfare to work programs. Maine has staunchly resisted the mandates and sadly there are still people who are not working when they are physically able to, even after the supposed 5 year lifetime limit on welfare benefits. It's time for Maine to get with the program!
Tuesday, January 13, 2009
Knitting for Coworkers
In other knitting related news, my flair for legwarmers seems to be catching on. I will refrain from complaining that it has taken several years of relentless work for this to finally happen. At least my legwarmer craze was acknowledged by most of my coworkers. If you ask one of my closer colleagues to describe me, legwarmers will come up. While I am a closet legwarmer wearer in some ways (I wear them under my pants), I am open to discussing my love for them and showing them off when the slightest bit of interest is shown.
Recently a beloved coworker/friend of mine sent me a beautiful card with a dog wearing legwarmers. She then told me a story about trying to buy some small legwarmers for her granddaughter's doll only to discover at the register that they were doggie legwarmers. She explained that she couldn't for the life of her figure out why they would sell 4 legwarmers that were the same for a doll instead of two different sets. Unfortunately the price for a set of doggie legwarmers is a bit drastic, so the poor doll had none. That's when I stepped in to save the day. Not only was her granddaughter very happy with the legwarmers, she has sent me a message. "Thank you and my doll needs boots."
Shhh, this is a secret. I am beginning my preparations for a set of 4 legwarmers for her dog, Jenna. It is just the next phase in my all out crusade to bring legwarmers back out into the open where their beauty can be enjoyed by all. Waaa Haaa Haaa!
Monday, January 12, 2009
Love the tree...
Tuesday, December 16, 2008
Limping Along
Well, tis the season for sitting on Santa's lap. We took the kids to visit and get their photo this weekend.
I got a special surprise when two of my "other children" gave me a special photo of them sitting on Santa's lap. I laughed so hard it hurt. It doesn't take much. They really aren't kids at all, as the photo will tell, but I have the great pleasure of working with them and supervising them.
I have to admit that my previous optimism over my health problems has waned over the past few days. Unfortunately, I had placed too much stock and hope in the second opinion I went for from a neurologist in Portland. I realized too late that I had been expecting that visit to be the light at the end of the tunnel and hadn't really prepared myself for anything but that. He wasn't bad, but certainly not promising in delivering any more answers. He wasn't even willing to answer me when I asked outright what the worst case scenario is, and if the possibility exists that I could die. I don't spend too much time contemplating dying, but it does occasionally enter my mind that the longer I wait for answers, the further along something catastrophic could be getting. It hasn't helped that my current pain medications are starting to fail and I am struggling to even walk now. I have accepted that I likely have a permanent limp and I can handle that, but the pain is not something I am willing to accept. I use a cane to walk in the house and now have to seriously consider if I am ready to start using it in public. I also have a tremor in my hand that before came and went, but now seems to be here for good. The neurologist told me that I have carpal tunnel syndrome and even suggested that my tremor might be anxiety. That was just plain stupid! First of all, the fact that I have carpal tunnel is not even worth my time to think about. It is so mild compared to everything else that I could care less about it. Second of all, the only thing I even worry about is talking to doctors, since everything else seems mild in comparison. If it was anxiety, I can't help but think it would be in both hands, not just in my affected side. I don't believe I even have the ability to be stressed or anxious about life and work, even though he kept alluding to the idea that I have a stressful job.
I have learned to live in the moment and really think only about today, every day. I have found ways to be nurturing and available to my children that don't need much physical exertion. In a nutshell, I have LET GO of many of my own expectations and worrying about whether people think I am a good mother, wife or employee. That is one of the positive changes I have seen from all of this. For the first time I have realized what it means to really stop and "smell the roses". I sit more and listen to my children, watching and just letting them know that I love them. It's hard to believe that before I was so busy trying to be "Supermom" that I missed many of the really special moments. Yeah, my house isn't as clean, but overall it isn't bad. I just take shortcuts wherever I can. I am still hopeful (naive?) but discouraged with the doctors. I have so many things in life to be grateful for and I don't intend to let anything stop me from enjoying them. I am not sure what the next step is for me with doctors and testing, but I guess in a few days I'll figure it out and move on. For today, I will do my best to muddle through the pain and look forward to celebrating my birthday with Eric for a few days in Kennebunkport.
Thursday, December 11, 2008
Johnny the Superhero
Yesterday I had a second cortisone shot in my neck. Since I was well prepared for the johnny and the back bearing, I had Eric write out a message for the doctor on my back. It said, "What's up Doc?" I think the doctor must expect just about anything because he took it in stride, even though I have noticed that he has a great sense of humor. Speaking of humor, the amount of time I spend going to doctors and the hospital for tests is getting beyond ridiculous. That and the frequent phone calls. When I told the receptionist at work I was going to the hospital again today she just shook her head in dismay. I told her I like to spend my spare time there, and I am getting to know a lot of people. Next week I have two appointments, so far. It's almost hard to believe that a year ago I would've done just about anything to avoid doctors and didn't take any medications, not even a vitamin. I don't even sweat it anymore when I have to bare naked parts, get injected, or subject myself to boob smooshage.
I have been working on knitting but things are getting done much slower than usual. I went through a knitting funk for a week or so where nothing seemed to turn out right. I started a second sock for "Mini Me" and realized that somehow I had counted wrong and had done several more rows of ribbing than I was supposed to. I switched over to a pair of mitts for my nephew but couldn't seem to get into it. It suddenly came to me a few nights ago that I really needed to knit with something extra soft and that would fix my "problem". I immediately came up with an idea and resurrected the angora that I bought at Spa last year. That seems to be just what I needed. I am making a hooded scarf with it and I'm almost done with the hood! I had forgotten how soft and utterly amazing this yarn is to knit with. I am already trying to think of another project so I can pick up some more at SPA this year. Eventually, I'll need to finish the sock and the mitts. I think my nephew will cast me out of the family if I don't make him those mitts soon. I have worked on several smaller projects and I am totally itching to make a sweater. I haven't decided what sweater I'll make, but immediately after the Xmas knitting is done, I will be casting on.
Saturday, December 6, 2008
It's a birthday tree
Today Eric and I took the kids up there for the first time. We went up Millay Hill Road, where generations of my mother's family lived, back then without electricity or plumbing. In recent years electricity has been brought part way up the hill but there is still this vast forest up that hill that is relatively untouched and primitive. My cousin and his wife live up there, a hefty walk into the woods with solar panels providing electricity and hot water. My grandparents house is at the bottom of the hill, currently owned by another cousin and occupied only a few times a year. Across the field is a farm house where my great grandmother lived when I was very young.
It was hard to imagine that I had never brought my children there before. Tradition is very important to me and I try to pass on as much to my children as I can. Even though 25 years have passed since my grandparents were alive, the land and house still hold vivid memories for me. It was a long drive, 2 hours each way, to get a birthday tree. But the tree is special, because it came from Millay Hill Road in North New Portland, one of the most special places on earth. It's been over 25 years since I have had one of these.
Friday, December 5, 2008
Johnny my love
Johhny my love, get out of the business
It makes me wanna rough you up so badly
Makes me wanna roll you up in plastic
Toss you up and pump you full of lead
This was moments after a phone conversation with my PCP where she was instructing me to go for the chest x-ray and telling me it's time to get "aggressive". I adore her, but part of me wanted to say "huh huh, when did that become apparent?" I am thinking of the mounting medical bills from all of the CT scans, lumbar puncture, blood tests, EMG, nerve conduction and x-rays. Not to mention the several doctors and physical therapy, which I failed. Not only am I getting weary of the radiology dept at CMMC and inconclusive tests, but dammit I HATE johnny's!
Earlier this week I donned one to get a cortisone shot in my neck, where I might have arthritis. I am waiting patiently for that to work so that I can go next week to do it all again. I am also waiting for the radiology dept to tell me when I can pay them another visit for a diagnostic mammogram and an ultrasound of my heart. The mammogram is on the advice of my neurologist deciding that although he doesn't think I have breast cancer, he can't figure out what might me causing my problems so maybe I have breast cancer, of course, not that he thinks so, but it could explain those things. (that was almost a direct quote, without the hands up in the air, baffled look attached) It's almost become an office joke that I spend all my lunches at the doctor's or radiology dept. Sometimes I do both. I am not concerned so much about the breast cancer, since I have almost had MS, arthritis, fibromayalgia, swollen lymph nodes and probably a few other things I've forgotten. I definitely have pinched nerves and can't walk without limping, but I don't know why. I've come to the conclusion that it's better not to worry until I get something worth worrying about.
The highlight of my adventures to the x-ray room was definitely today. Usually I get to keep my bra on under my johnny, but not today. No, I got to bare all under that bare thread tablecloth with strings I had wrapped around me. Not only did I get to sport that God awful contraption in an upright position, but the x-ray was pointing right at the spot that would prove to the world that my anatomy is not quite as perky as it used to be. The part that almost did me in (sometimes I swear I'm going to laugh myself to death) was when I got to sit in a chair a few feet away from some workmen doing demolition on the x-ray room. Yes, I must have looked so regal there in my johnny, boobs on my lap staring awkwardly askance, pretending to have a great fascnination with the clock, strategically keeping my gaze away from the men at work. One thing I have learned, modesty flies out of the window when you have the "great mysterious illness".
But no matter what, I will still reign supreme as the Queen of the backyard hot tub!
Tuesday, November 18, 2008
Emily's Meme keeps going...
I am going to keep this Meme going since that is the point of a meme. To find out more, check out Emily's blog here:
http://chickwithsticks.typepad.com/my_weblog/2008/11/meme.html
Then if anyone reading this is so inclined, consider continuing it. Please let me know if you do! The challenge for me is keeping the answers to one word. That leaves some of the answers open to different interpretations.
Where is your mobile phone? purse
Where is your significant other? diningroom
Your hair color? dirty
Your mother? nurturing
Your father? wise
Your favorite thing? family
Your dream last night? work
Your dream goal? retirement
The room you’re in? livingroom
Your hobby? knitting
Your fear? unknown
Where do you want to be in 6 years? self-employed
Where were you last night? home
What you’re not? untruthful
One of your wish-list items? steady-gait
Where you grew up? Topsham
The last thing you did? processed
What are you wearing? legwarmers!
Your TV? off
Your pets? rambunctious
Your computer? works
Your mood? BRAZEN
Missing someone? grammy
Your car? red
Something you’re not wearing? tiara
Favourite shop? TKE
Your summer? short
Love someone? many
Your favourite color? periwinkle
When is the last time you laughed? 2:30
When is the last time you cried? doctor's
Sunday, November 16, 2008
A Big Red Wolf I'd Rather Be
Serendipity is my all time favorite word. That and the form I most often it use it in, serendipitous. That's the word that came to mind when I got home from the library yesterday with a children's book and only then realized it was perfectly fitting for my mood. It was just serendipitous! I grabbed it off the shelf for two reasons, the title was "The Red Wolf" and the illustration on the cover was beautiful. I thought my son would enjoy it. When My son and I opened it up a short time later, I was delighted to find myself reading a story about a young girl knitting herself into a wolf costume in order to handle the great "wild world". I quickly decided that I was meant to find this book right at this moment. Copyright 2002 Cahners Business Information, Inc.
Monday, October 27, 2008
A Super Garden Gnome with Glow In the Dark Teeth

An Alpaca hat, which I made for a friend's birthday and then stealthily kept for myself. I'll eventually get over the guilt.


Monday, October 6, 2008
Time Out
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The valley girl impersonator who dresses like a granola
- Amy
- Oh my God Becky, look at her knit. She must hang out with all those boring grandmothers or something. I mean, my God, she's knitting, she's so LAME. She probably has a knitted toilet paper cover in her bathroom. She only knits because no one else will hang out with her.